A tough year - 4 months in the ED

Thank you all for the love for Ashton, Lillian and us. I’ve been slack on NICU cheer socials as we’ve been flat out & stressed out with kids medical stuff. We’ve now hit a new record with 4 months straight of emergency hospitals and ambulances.

First Ashton with severe seizures in Aug/Sept/Oct, and now November too with Lillian’s emergency room visit. She caught chickenpox which was fine until it turned serious & reached her eyes causing severe inflammation and vision loss. Despite the pain, hospital visits, many medications, tests, & even a cancelled birthday, Lillian has been so positive & happy, a true little rockstar.

So proud of our brave girl  And hopefully they finally have Ashton’s seizures under control with the right meds now & crossing it all for no more ED visits please!